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Email UsOneLondon Health Data Strategy
Since 2022, we have led the communications and engagement workstream of the OneLondon Health Data Strategy (OLHDS) – a collaboration of the five ICSs, NHS England London and other partners, working together to make London one of the healthiest global cities.
In 2023, London was awarded national funding to establish a Sub-National Secure Data Environment (SN SDE) to support research across the Capital. With this new funding, partners across London are working together to develop a world leading resource for health and care improvement known as the SDE.
The SDE provides secure access to data and a range of services to accelerate research and innovation leading to improved patient care. Our ambition is for London to be the healthiest global city, and the best in which to receive health and care services. Joining up Londoners’ health and care information across the Capital is key to this. It will help us meet the needs of all of London’s communities, whether through improved direct care or enhanced research and development capabilities.
As part of our work on the OLHDS, we design and produce visual assets, informative documents, and videos to support the SDE. In 2024/25, we worked with multiple stakeholders, such as the Londonwide Local Medical Committee (LwLMC) to develop a comprehensive set of FAQs and supporting resources for data controllers, including a new microsite, explainer videos, and guides.
Below is an example of an explainer video created to help internal staff and stakeholders understand how the SDE operates, and the value it brings to health and care.
Most recently, we produced a 13-minute video capturing a range of perspectives on the SDE which included views from the public, clinicians, population health experts, and researchers.
The video has been shared with senior leaders across the public sector.
Patient and Public Involvement and Engagement (PPIE)
Public involvement remains at the heart of our work to develop the London SDE. The public have been engaged through the Conversation with Londoners – the world’s largest public deliberation on the use of health and care data. It was this Citizens’ Summit which provided a clear instruction from the public for how data should be used and are now being used to shape policy for London.
As part of our PPIE and citizen representation work, we continue to engage with the public through:
In October 2024, we also hosted our first quarterly workshop with NIHR colleagues to strengthen engagement with researchers and academics. This featured speakers including Andrew Morris, Director of Health Data Research (HDR) UK and Alice Mortlock, Head of Research Capacity and Growth at the Department of Health and Social Care (DSHC) and NIHR Strategy and Engagement Board Member.
