Young Onset Dementia: Experiences of diagnosis and support services across south London

People diagnosed with dementia whose symptoms started before they were 65 are often described as ‘younger people with dementia’ or as having young-onset dementia. The symptoms of dementia are not generally determined by a person’s age, but younger people often have different needs, and require some different support (Alzheimer’s Society).

The South London Mental Health and Community Partnership (SLP) has convened a south London working group to gather information on the existing young onset dementia diagnosis pathways and available support across south London, with the view to learn and make improvements to the diagnosis experience and access to support services.

This group was formed in recognition that the SLP, a partnership of the three mental health trusts, is in a potentially unique position to implement positive changes in the young onset dementia pathway.

During October and November 2019, the HIN undertook engagement on behalf of the working group, with people diagnosed with young onset dementia and their carers to understand their current lived experience of diagnosis and the support they receive. Click the below button to read the findings and download the report.