Message from Aurora Todisco and Faith Smith
|
|
Welcome to our latest edition of Partners with People!
As we embark on another year of innovation and collaboration within the Health Innovation Network (HIN) South London, it's essential to reflect on the significance of involvement in our projects. We often ask ourselves why involvement matters so much, and the answers resoundingly affirm its importance as through involvement we ensure that our projects are truly patient-centred, responsive, and inclusive of diverse perspectives.
Being a Lived Experience Partner means more than just being a participant, it's about actively contributing to strategic oversight, decision-making processes, and policy development. Our unique perspectives as patient advocates bring invaluable insights that enrich the design and implementation of innovations. We provide feedback on usability, accessibility, and potential pitfalls that may be overlooked, ensuring that our solutions are effective in improving health outcomes.
Reflecting on our journey since joining the HIN in February 2023, we've seen remarkable changes within the organisation. Our involvement has led to achievements in driving quality improvement and fostering a culture of continuous learning and innovation. From team meeting presentations to articles in reputable publications, these outcomes demonstrate the impact of our contributions.
There are challenges we've encountered along the way. Greater transparency and communication, coupled with recognition of our expertise, are crucial for enhancing the involvement experience. We advocate for ongoing dialogue and collaboration, ensuring that the patient voice is truly valued and respected in every aspect of our projects.
Looking ahead, there's always room for improvement. We must continue to explore ways to involve people and communities more effectively, learning from past experiences and embracing innovative approaches. By fostering inclusive environments and recognising the expertise of all stakeholders, we can drive positive change and achieve meaningful outcomes. Together, we can make a difference and shape the future of healthcare for generations to come.
Thank you for your continued dedication and commitment to involvement. Here's to another year of collaboration, learning, and innovation.
|
|
|
Faith Smith and Aurora Todisco
Lived Experience Partners
|
|
|
1. News
- Digital First Patient Perspectives
- Digital Health Technologies in Mental Health – Public Perceptions Insight
- One year on: how can working in partnership with people living with chronic (persistent) pain improve care?
- Article published in Rheumatology on the Remote Monitoring in Rheumatoid Arthritis (RA) evaluation
2. Partner updates
- ARC South London Active Involvement in Research Report
- New Musculoskeletal (MSK) Community Day tackles muscle and joint pain and boosts wellbeing
- Blog: A relational journey rather than a project
- Blog: Recommendations for how to engage the public in collaborative projects
- Blog: Intersectionality – buzzword or tool for meaningful health research?
- Podcast: Centric community research
3. Ways to get involved
- Help us to find out how diabetes care for people aged 26 to 39 years with type 2 diabetes can be improved?
- Sydenham Gardens African & Caribbean group is looking for a new volunteer
- Join Diabetes Communities in Action
4. Upcoming events
- Positive Talents – FOR carers BY carers
- Dementia Community Research Network event: bringing together community partners and researchers in the dementia field
- NHS England Shine the Light on Coproduction
- Co-Production Collective Co-Pro cuppa
- Top Tips on Engaging with Refugees and Asylum Seekers
5. Tips, Tools and Training
- Coproduction collective resource library
- The Patient Experience Library
- Adopting the Triangle of Commitment to work in partnership with people and communities in health and social care
- Coproduced statements as powerful conversation starters
|
|
|
Digital First Patient Perspectives
The Health Innovation Network (HIN) South London recently published a report around perspectives of digital tools in primary care. With findings showing that up to three in four Londoners are using digital tools to interact with their GP surgery.
The project investigated online forms, the NHS App and GP surgery websites and identified key themes, benefits and areas for development related to the each of these tools. Find out more and access the key outputs of the project,
|
|
Digital Health Technologies in Mental Health – Public Perceptions Insight
Health Innovation Network (HIN) South London was commissioned by NHS England to conduct a report looking at public views of digital health technologies (DHTs) in mental health. Findings from the study showed that DHTs offer better accessibility and convenience than traditional care, and people liked the prospective anonymity they provide.
Learn more about the findings from this report.
|
|
One year on: how can working in partnership with people living with chronic (persistent) pain improve care?
One year on from the launch of our Chronic Pain Experience-Based Co-Design (EBCD) project, Natasha Callender, Senior Project Manager and Natasha Curran, Medical Director and Consultant in Pain Medicine share reflections on their learnings from working with people living with chronic pain.
Learn more.
|
|
Article published in Rheumatology on the Remote Monitoring in Rheumatoid Arthritis (RA) evaluation
The Health Innovation Network (HIN) South London have recently published an article in Rheumatology on the Remote Monitoring in Rheumatoid Arthritis (RA) evaluation. The evaluation studied the active participation of two patients with lived experience of using the remote monitoring system and of the National Rheumatoid Arthritis Society (NRAS) which is a patient organisation. For more details on the project see our website.
|
|
ARC South London: Active Involvement in Research Report
In October ARC South London hosted an Active Involvement in Research event. The event focused on sharing insights and knowledge from patient and community organisations as well as exploring south London's health and care needs and inequalities through research.
In-person and online events are now available to view. This also includes links to presentations and a summary of experience and ideas shared during break-out groups. Download the report here.
|
|
New Musculoskeletal Community Day tackles muscle and joint pain and boosts wellbeing
In February the south east London MSK programme delivered one of the first Musculoskeletal (MSK) Community Days for people living with MSK conditions.
The MSK team worked in partnership with the MSK Community Lived Experience Group to co-design the day. Members of the group said that they would like to be able to talk about what matters to them and discuss their muscle and joint health in a relaxed environment, and, if possible, receive general advice and support while they were there too.
Further MSK Community Days are due to take place across south east London over the next month. Read more
|
|
Blog: A relational journey rather than a project
The Co-Production Collective have recently published this blog about how to build mutually beneficial relationships between researchers and community groups.
|
|
Blog: Recommendations for how to engage the public in collaborative projects
See this article from the Co-Production Collective Co-producer Yesmin, sharing what she sees as the key principles of inclusive and meaningful involvement.
|
|
Blog: Intersectionality – buzzword or tool for meaningful health research?
Dr Stan Papoulias, research fellow, Service User Research Enterprise (SURE) and deputy theme lead for the patient and public involvement research theme at the Applied Research Collaboration South London recently published this blog on intersectionality in research.
|
|
Podcast: Centric community research
Listen to a new podcast from Centric community research exploring social and environmental issues and empowering seldom-heard communities.
|
|
Help us to find out how diabetes care for people aged 26 to 39 years with type 2 diabetes can be improved?
The number of people with early onset type 2 diabetes (diagnosed under age 40) is increasing year-on-year and we want to find out about the experience of accessing diabetes care from people between the ages of 26 and 39 with type 2 diabetes, and how these services could be improved for them.
If you are 26 to 39 years old with type 2 diabetes and would like to tell us about your experience by completing a survey or chatting with us, or if you are a health care professional working with this group and can invite them to take part, then please email sally.irwin1@nhs.net for further information or to take part.
|
|
Sydenham Gardens African & Caribbean group is looking for a new volunteer
This group, which runs on Monday afternoons is looking for a new volunteer. For more details on the role, please visit: https://www.sydenhamgarden.org.uk/african-caribbean-support-volunteer-2/
|
|
Join Diabetes Communities in Action
Are you ready to make a change in the fight against diabetes?
Diabetes UK is thrilled to introduce "Diabetes Communities in Action" – a vibrant community network of individuals affected by or at risk of diabetes. This is your opportunity to share your voice, experiences, and expertise to influence the work and decision-making in the world of diabetes management and care.
Why Join?
- Regular Updates: Stay informed about the latest news, roles to apply for, and exciting opportunities.
- Material Reviews: Have your say in shaping resources and materials that impact the diabetes community.
- New Ideas: Share your thoughts on innovative approaches and directions.
- Surveys: Participate in surveys to drive positive change.
We aim to reach out to as many people as possible to make a difference together.
To join the movement, click the link below and become a part of this powerful network for change:
Diabetes Communities in Action | Diabetes UK
Your voice matters! For any questions, email us at involvement@diabetes.org.uk.
|
|
|
Do you have any news or great examples of work related to involvement for a future bulletin? Let Sophie Lowry know.
|
|
|
Positive Talents – FOR carers BY carers
Come along for a fun event, share your talent! This event takes place on Friday, 3 May 2024, from 4 to 6 pm at Cygnet Churchill Hospital, Barkham Terrance, Lambath Road, SW1 7PW.
To book a space please contact: Family&Friends@cygnethhealth.co.uk
For further details contact either: Annette Davis or Faith Smith
|
|
Dementia Community Research Network event: bringing together community partners and researchers in the dementia field
The ‘Dementia Community Research Network: involvement for people affected by dementia from minority ethnic backgrounds (DCRN)’ is a co-developed network including community partners and dementia researchers in south London.
The aim is to have wider involvement in research for people affected by dementia from minority ethnic backgrounds.
The DCRN is delighted to invite all community groups, dementia researchers, and people affected by dementia from across south London to their first engagement event.
With short project presentations and pop-up tables, community partners and researchers will have the opportunity to share their projects and outcomes and exchange knowledge and experiences. It will also provide information about what it means to members of the public to be involved in research.
When: Thursday, 9 May 2-4 pm
Where: South London venue to be confirmed
For more information about attending or taking part in the DCRN event: please email dementia researchers and Network co-leads, Olivia Luijnenburg, Annabel Farnoodor and Lesley Williamson.
|
|
NHS England: Shine a Light on Co-Production
These monthly events by the NHS England The Experience and Partnerships Team aim to shine a light on the art of the possible in relation to co-production and demonstrate what can be achieved when we work together with people with lived experience. Each event delivers two ‘best practice’ examples of co-production work. They are presented by people with lived and learnt experience
Join the next event on 16 April 2024
|
|
Co-Production Collective Co-Pro cuppa
Co-Pro Cuppas are informal monthly sessions, a chance to connect with friends, meet new people and chat about whatever you fancy over a cuppa!
The next session is on 5 May. To find out more about and sign up, visit Eventbrite.
|
|
Top Tips on Engaging with Refugees and Asylum Seekers
Health Innovation East Midlands invites you to a webinar on engaging with Refugees and Asylum Seekers on Wednesday 22 May 2024, 11am-12:15pm.
In this webinar you will hear from Debbie Royle, Deputy Director of the Nottingham and Nottinghamshire Refugee Forum and Halima Hamza, Interpreter and General Adviser for the Nottingham and Nottinghamshire Refugee Forum, who has lived experience within the Refugee and Asylum Seeking communities.
They will provide practical tips on how to engage with communities, and use the ideas and experiences gained from engagement to enable you to deliver more effective and inclusive services, research, improvements, and innovations. Register to attend here.
|
|
Co-Production Collective resource library
The Co-Production Collective have developed a resource library which contains all sorts of useful things from a variety of different places and includes webpages, reports, videos, books, journal articles and much more. This library is constantly being added to as more resources become available.
|
|
The Patient Experience Library
The Patient Experience Library contains the latest and best evidence on patient experience and patient/public involvement.
To search the library, please visit: https://www.patientlibrary.net/
|
|
Adopting the Triangle of Commitment to work in partnership with people and communities in health and social care
Aurora, one of the Health Innovation Network (HIN) South London, has recently published a framework to help combat the challenge many organisations face when trying to build meaningful partnerships with people and communities. This is the Triangle of Commitment.
This is a framework that works as a visual tool to spotlight three crucial elements to fostering a beneficial working relationship with healthcare professionals and individuals with lived experience.
Find out more about how the Triangle of Commitment can help create positive environments for involving people and communities in improving health and care.
|
|
Co-Produced statements as powerful conversation starters
Think Local Act Personal (TLAP) has published a resource called Making it Real. It showcases a set of co-produced statements that describes what good care and support looks like. It can be used by anyone who needs to spark ideas and start conversations about improving people’s lives.
|
|
|
Please forward this email to anyone who may be interested. To sign up, receive involvement updates, and learn how to get involved, Fill out the survey.
|
|
|
|
|
|
