Message from Sophie Lowry
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Happy New Year!
As we enter the new year, this is a great time to reflect on what was achieved in 2023 as well as looking forward to what 2024 has in store. During 2023, some personal highlights at the HIN were the recruitment of our Lived Experience Partners, the completion of a patient safety project looking at chronic pain through the use of experience based co-design methodology, and a fab celebration event for the HEAL-D programme with our Experts by Experience reference group.
Whilst elsewhere in the health and care system, the focus on involvement continued to grow – with more organisations recognising the immense value that working with people and communities can bring, and more resources being developed to support this work. Such as the launch of the NHS England resource guide to co-production and quality improvement, and the monthly ‘Shine the Light on Coproduction’ (which the HIN presented at in November) events which attract large numbers of people, from across the country, to hear about best practice examples of coproduction, presented by people with lived and learnt experience.
Looking forward to the year ahead, we have lots of exciting projects at the HIN, with plenty of opportunities to get involved. Currently we are looking for people to join our experience based codesign project on pulmonary rehabilitation, as well as for people with experience of virtual wards to join a reference group. For more details on these, please see the ‘ways to get involved’ section.
As always, we are really interested in hearing from anyone with interest in this area and are happy to include any partner updates in future newsletters. Please do contact me on Sophie.lowry2@nhs.net if there is anything you’d like to share or discuss.
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Sophie Lowry
Implementation and Involvement Manager
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1. News
- Health Innovation Network South London Chronic (Persistent) Pain Experience-Based Co-Design Project Outputs
2. Partner updates
- Finding islands of good practice: a public involvement travel guide
- King’s Fund article on ‘Making patient experience a priority’
3. Ways to get involved
- Have you, or someone you care for been referred to pulmonary rehab?
- South East London Polypharmacy Community of Practice upcoming meetings
- Do you live in South West London and been referred to a hospital for suspected skin cancer?
- NHS England Innovation, Research, Life Sciences & Strategy (IRLSS) group are recruiting Patient and Public Voice Partners to join their Strategic Co-production group (SCG)
- New creative arts competition launched to improve awareness of healthcare rights for children and young people in London
- Calling all people with Parkinson’s and their carers
4. Upcoming events
- NHS England Shine the Light on Coproduction
- Co-Production Collective Co-Pro cuppa
5. Tips, Tools and Training
- Coproduction collective resource library
- The Patient Experience Library
- Adopting the Triangle of Commitment to work in partnership with people and communities in health and social care
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Health Innovation Network South London Chronic (Persistent) Pain Experience-Based Co-Design Project Outputs
The outputs of our Chronic (Persistent) Pain Experience-Based Co-Design Project are now available on our website. These include an educational film series created with people living with chronic pain, a co-designed poster and a podcast featuring Graham, one of our experts by experience, and project lead Natasha Callender discussing how to engage people living with chronic pain in patient safety projects.
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Finding islands of good practice: a public involvement travel guide
The ARC South London have recently published a blog by Mary Newburn, patient and public involvement lead, maternity and perinatal mental health theme, NIHR ARC South London and Naomi Morley, research associate, NIHR ARC South West Peninsular patient and public involvement team. They discuss a mini-series of co-designed webinars aimed at people interested in public involvement in research and services. Read the blog
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King’s Fund article on ‘Making patient experience a priority’
The King’s Fund recently released an article about their learning from working with the Heads of Patient Experience (HOPE) network to design and develop projects to better understand how people and communities are experiencing health and care services. Read their findings here.
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Have you, or someone you care for been referred to pulmonary rehab?
The HIN are looking to speak to people who live, or use healthcare services in south east London, are aged over 18 and fit one of the below categories:
- Have used pulmonary rehab services in south London to manage your lung condition.
- Have been referred to pulmonary rehab services to manage your lung condition, but did not attend or complete the course.
- Are a carer of someone who fits either of the above categories.
The aim of this project is to help improve the pathway for patients who are referred to pulmonary rehab, and who would benefit from associated mental health or wellbeing support.
To take part, you can take part in a 45minute interview and/or attend a series of workshops. You will be paid for your time.
To find out more information, please email Sophie.lowry2@nhs.net
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South East London Polypharmacy Community of Practice upcoming meetings
The South East London Integrated Care Board (ICB) has worked with the Health Innovation Network south London to create a Community of Practice for Polypharmacy (the use of multiple medications). This is where a group of people (patients, carers, and health and care staff) come together with a shared interest in ensuring people are taking the right medicines.
There are two upcoming in-person meetings located in south east London on Wednesday 28 February 2024 and Wednesday 20 March 2024
You do not need to attend all sessions, and Experts by Experience can be paid for their time
If you are interested in taking part or would like more information please contact Natasha Callender: natasha.callender3@nhs.net
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Do you live in South West London and been referred to a hospital for suspected skin cancer?
UCLPartners is conducting an evaluation of a teledermatology pilot at Croydon University Hospital, aiming to understand the role of teledermatology in improving care for patients with suspected skin cancer. This involved a 1-hour interview to understand your experience of the process.
You will receive remuneration of £25 as a thank you for your time.
If you would like to participate, or have any questions, please email Sara Sekelj: sara.sekelj@uclpartners.com
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NHS England Innovation, Research, Life Sciences & Strategy (IRLSS) group are recruiting Patient and Public Voice Partners to join their Strategic Co-Production Group (SCG)
The SCG group provides strategic advice to the leadership team and consists of both patients and staff, ensuring the voices of people with lived experience actively shape our research and innovation programmes.
Full information for this role can be found here and an application form is here
If you have any queries about the role, or would like an alternative format, please email england.aacppi@nhs.net
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New creative arts competition launched to improve awareness of healthcare rights for children and young people in London
NHS England – London’s Babies, Children and Young People’s (BCYP) Transformation team and Partnership for Young London have launched a creative arts competition to help improve awareness of healthcare rights among children and young people.
The competition is open to children and young people living in London, aged 3-25.
Find full details here. If you have any other questions about this competition, please contact the NHS England – London BCYP team on: england.cyptransformationldn@nhs.net.
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Calling all people with Parkinson’s and their carers
A research team at King’s College London are looking for people with Parkinson’s and/or their carers for a research study aiming to understand the experience of taking medications for Parkinson’s. Many people with Parkinson’s take medication regularly and often take more than one type.
Currently, there is very little information on whether people have difficulties with taking their Parkinson’s medication and what they might be. Taking part involves attending a single focus group with up to 8 others for an hour via a video call (MS TEAMS).
For more information please contact: Shelley Jones, shelley.1.jones@kcl.ac.uk , Consultant Pharmacist in Neurosciences at King’s College Hospital.
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Do you have any news or great examples of work related to involvement for a future bulletin? Let Sophie Lowry know.
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NHS England Shine the Light on Coproduction
These monthly events by the NHS England Experience of Care Team aim to shine a light on the art of the possible in relation to co-production and demonstrate what can be achieved when we work together with people with lived experience.
Each event delivers two ‘best practice’ examples of co-production work. They are presented by people with lived and learned experience.
February: https://www.events.england.nhs.uk/events/shine-a-light-on-co-production-february-event
March: https://www.events.england.nhs.uk/events/shine-a-light-on-co-production-march-event
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Co-Production Collective Co-Pro cuppa
Co-Pro Cuppas are informal monthly sessions, a chance to connect with friends, meet new people and chat about whatever you fancy over a cuppa!
The next session is 5 March. To find out more about and sign up, visit Eventbrite.
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Coproduction collective resource library
The Co-Production Collective have developed a resource library which contains all sorts of useful things from a variety of different places and includes webpages, reports, videos, books, journal articles and much more. This library is constantly being added to as more resources become available.
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The Patient Experience Library
The Patient Experience Library contains the latest and best evidence on patient experience and patient/public involvement.
To search the library, please visit: https://www.patientlibrary.net/
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Adopting the Triangle of Commitment to work in partnership with people and communities in health and social care
Aurora, one of our HIN Lived Experience Partners, has recently published a framework to help combat the challenge many organisations face when trying to build meaningful partnerships with people and communities. This is the Triangle of Commitment.
This is a framework that works as a visual tool to spotlight three crucial elements to fostering a beneficial working relationship with healthcare professionals and individuals with lived experience.
Find out more about how the Triangle of Commitment can help create positive environments for involving people and communities in improving health and care.
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