Message from Sophie Lowry
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Welcome to the June edition of Partners with People.
In April, I was fortunate to present at the Institute for Healthcare Improvement (IHI) and BMJ International Forum on Quality and Safety in Healthcare alongside Faith and Aurora (HIN Lived Experience Partners), and Catherine Dale (Programme Director, Patient Safety). Over a fireside chat, we discussed the HIN approach to involvement and our Lived Experience Partner role.
The conference had a strong focus on involvement throughout, and people with lived experience played a central role in the planning and delivery of the event. It was fantastic to see and really shone a light on the importance of partnering with people to achieve improvement in healthcare.
Meanwhile, at the HIN, there are numerous involvement initiatives underway. Notably, our experience-based co-design project on pulmonary rehabilitation and mental health is nearing completion this month and has involved working with a fantastic group of patients and staff to codesign recommendations around this topic in south east London. Look out for outputs in September’s issue!
Additionally, we are conducting several focus groups for people with early-onset diabetes and cardiovascular disease, as well as workshops to improve the 111 pathway. For more details on upcoming activities like these, please refer to the ‘ways to get involved’ section.
This position has given me the opportunity to say a (temporary) goodbye and introduce Kristina Leonnet, who will be taking over the involvement manager role from July for six months. Please do reach out and say hi!
Kristina says: “I'm very excited to have this opportunity to work closer with people with lived experience and community and partner organisations as the insights you provide are essential to making sure our work meets the needs of patients, service users and carers. Please do not hesitate to reach out if there's anything you'd like to discuss or collaborate on.”
I'm very excited to have this opportunity to work closer with people with lived experience and community and partner organisations as the insights you provide are essential to making sure our work meets the needs of patients, service users and carers. Please do not hesitate to reach out if there's anything you'd like to discuss or collaborate on.
As always, we are very interested in hearing from anyone with an interest in this area and are happy to include any partner updates in future newsletters. Please contact Kristina if there is anything you’d like to share or discuss.
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Sophie Lowry
Involvement Manager
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The International Fourm was attended by Lived Experience Partners (LEPs) Aurora Todisco and Faith Smith, Programme Director Catherine Dale, and Implementation and Involvement Manager Sophie Lowry. They held a fireside chat discussing the role of LEPs, challenges they've faced in the last year, and highlights.
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1. News
- Patient Entrepreneur Programme
2. Partner updates
- Podcast: Centric community research
- Webinar: Patients Association on the realities of life with a long-term condition
- New National Institute of Health and Care Research (NIHR) Strategic Commitments for Public Partnerships 2025 - 2030
- Blog: Involvement across boundaries – joint or separate?
- Video and webinar: the difference that lived experience made to care
- Report: co-production and inequalities
- Animation: Black younger perspectives on research involvement
3. Ways to get involved
- Cicely Saunders Institute: New Public Involvement Online Forum
- Test out new TeleRehab equipment for stroke recovery
- Maternity experiences survey
- Tell South East London ICB about your experience of using interpreting services in Lambeth, Lewisham and Southwark
- Invitation to all patients with a diagnosis or experience of cancer
- Have your say on the NHS Constitution
4. Upcoming events
- NHS England: Making a difference by becoming a Peer Leader
- NHS England: Shine the Light on Co-production
- Co-Production Collective: Co-Pro cuppa
- National Co-Production Week 2024
5. Tips, Tools and Training
- Co-produced statements as powerful conversation starters
- Co-production collective resource library
- The Patient Experience Library
- Adopting the Triangle of Commitment to work in partnership
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Patient Entrepreneur Programme
A new programme from the NHS Clinical Entrepreneur Programme called the Patient Entrepreneur Programme (PEP), is a pilot initiative is aimed at individuals who have experienced illness or condition and have developed a product based on their experience as a patient.
Learn more about this programme here.
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Podcast: Centric community research
Centric community research has produced a series of Cen-X community podcasts exploring health, social and environmental issues and empowering seldom-heard communities.
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Webinar: Patients Association on the realities of life with a long-term condition
In "The Untold Patient Stories: Shedding light on the realities of life with a long-term condition" webinar four people who live with long-term health conditions shared what their day-to-day lives are like.
You can watch the webinar here.
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New National Institute of Health and Care Research (NIHR) Strategic Commitments for Public Partnerships 2025 - 2030
The NIHR has recently published their first Strategic Commitments for Public Partnerships, set out to improve how they work with patients, service users, carers and the public.
Find out more here.
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Blog: Involvement across boundaries – joint or separate?
In this blog, Savi Hensman, ARC South London's involvement coordinator discusses lessons learnt for effective joint working in research involvement.
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Video and webinar: the difference that lived experience made to care
Integrating Mental and Physical Healthcare Systems (IMPHS) was a 3-year funded project commissioned by the Maudsley Charity. In this project, Experts by Experience supported staff to deliver the best possible care and they made a massive difference to health outcomes for patients in south London.
In this video members of the IMPHS project team and some Experts by Experience talk about the difference that lived experience made to care.
You can find out more about IMPHS in this webinar sharing the outcomes from a service evaluation investigating how physical healthcare is approached within South London and Maudsley adult community mental health teams.
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Animation: Black younger perspectives on research involvement
The Youth Involvement and Engagement Lab have produced this animation which creatively reflects the perspectives of some younger Black people involved in research.
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Cicely Saunders Institute: New Public Involvement Online Forum
The purpose of this forum is to bring patients, families, and members of the public together to share ideas and get involved in palliative care and rehabilitation research.
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Test out new TeleRehab equipment for stroke recovery
Do you have a balance disorder due to vestibular dysfunction, stroke, Mild Cognitive Impairment (MCI) or long COVID-19?
The HIN is running an event on 3 July in central London to test out and provide feedback on new augmented reality telerehabilitation technology.
To find out more or sign up, please contact karla.richards@nhs.net
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Maternity experiences survey
Anya, a breastfeeding and parenting support app, is a NHS Innovation Accelerator (NIA) fellow. They currently have a survey asking parents about their experience of maternity care and are particularly keen to hear from those from minoritised groups.
Respondents do not need to be current users of the Anya app – all views are welcomed. To complete the survey, click this link.
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Tell South East London ICB about your experience of using interpreting services in Lambeth, Lewisham and Southwark
If you are registered at a GP practice in Lambeth, Lewisham or Southwark and use an interpreter when accessing an appointment with your GP, nurse, or practice staff then south east London ICB want to hear from you.
Please complete their online survey. The survey is available in multiple languages.
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Invitation to all patients with a diagnosis or experience of cancer
Lewisham and Greenwich Trust would like to hear your thoughts about the information and support you received after getting a cancer diagnosis. Please complete a short survey
Your feedback will help Lewisham and Greenwich Trust to understand what works well and how they can improve information and support for patients who’ve had a cancer diagnosis.
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Have your say on the NHS Constitution
The NHS Constitution sets out the principles, values, rights and pledges underpinning the NHS as a comprehensive health service, free at the point of use for all who need it.
It empowers patients, staff and the public to know and exercise their rights to help drive improvements in quality, efficiency, and responsiveness throughout the NHS. It brings together, in one place, existing rights as set out in various legislation.
The NHS constitution, last updated in 2015, must be updated at least every 10 years by the Secretary of State for Health and Social Care.
This national consultation runs for 8 weeks and closes at 11.59pm on Tuesday 25 June: NHS Constitution: 10-year review - Department of Health and Social Care (dhsc.gov.uk).
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Do you have any news or great examples of work related to involvement for a future bulletin? Let Sophie Lowry know.
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NHS England: Making a difference by becoming a Peer Leader
Hosted by NHS England’s primary and community transformation and improvement team, this webinar provides an opportunity for people with lived experience to learn how they can make a positive difference in health and care services by becoming a peer leader.
Join the webinar on Monday 24 June 12-1pm. If you have any questions or want to find out more information please get in touch with the team at england.pldp@nhs.net.
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NHS England: Shine a Light on Co-production
These monthly events by the NHS England Experience of Care Team aim to shine a light on the art of the possible in relation to co-production and demonstrate what can be achieved when we work together with people with lived experience.
Each event delivers two ‘best practice’ examples of co-production work. Register for their upcoming events in June and July.
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Co-Production Collective: Co-Pro cuppa
Co-Pro Cuppas are informal monthly sessions, a chance to connect with friends, meet new people and chat about whatever you fancy over a cuppa!
To find out more sign up here.
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National Co-Production Week 2024 (1 – 5 July 2024)
The Social Care Institute for Excellence (SCIE) is hosting lots of online sessions on the theme of 'Co-production: What’s Missing?’
For further information and how to register click here.
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Co-produced statements as powerful conversation starters
Think Local Act Personal (TLAP) has published a resource called Making it Real. It showcases a set of coproduced statements that describes what good care and support looks like. It can be used by anyone who needs to spark ideas and start conversations about improving people’s lives.
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Co-production collective resource library
The Co-Production Collective have developed a resource library which contains all sorts of useful things from a variety of different places and includes webpages, reports, videos, books, journal articles and much more. This library is constantly being added to as more resources become available.
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The Patient Experience Library
The Patient Experience Library contains the latest and best evidence on patient experience and patient/public involvement.
To search the library, please visit: https://www.patientlibrary.net/
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Adopting the Triangle of Commitment to work in partnership
This is a framework that works as a visual tool to spotlight three crucial elements to fostering a beneficial working relationship with healthcare professionals and individuals with lived experience.
Find out more about how the Triangle of Commitment can help create positive environments for involving people and communities in improving health and care.
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Please forward this email to anyone who may be interested. To sign up, receive involvement updates, and learn how to get involved, Fill out the survey.
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