Welcome to the June edition of Partners with People
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I’m really pleased to be back after a break and want to extend a big thank you to Kate and Kristina for their fantastic work leading involvement over the past year. Their dedication has kept our focus on meaningfully involving people and communities front and centre at the HIN South London.
At the HIN this month, we are excited to share that we’ve recently welcomed two new Lived Experience Partners, Kreena and Dale. Their insights and experiences will bring fresh perspectives to our work. Look out for a proper introduction to them in the next issue!
If you have any updates or opportunities you’d like to share in a future edition, please do get in touch. We’d love to hear from you. Also, if you find this newsletter useful, please feel free to share it with your networks to help us grow our community.
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Sophie Lowry
Implementation and Involvement Manager
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News from the HIN
- Vitacam and championing co-design
- HIN South London Insights Team win the Public Involvement and Community Engagement award
- Myasthenia Gravis report
Partner updates
- KIS launch the 4Pi Questionnaire
- The role of emotions in public involvement in research Webinar
- Creative approaches to community engagement and involvement blog
- Thank you events – “The backbone to everything we do in public involvement” blog
- Webcomic brings to life the experiences and challenges of patient and public involvement
- Demystifying public and community involvement and engagement webinar
Ways to get involved
- The Healthcare Partnership Network
- South east London ICB Creative Health Survey
- Government survey: shaping a new Men’s Health Strategy for England
Upcoming events
- Kings Health Partners workshop
- Sedulous Collective CIC’s bold community knowledge exchange series, The Good, the Bad & the Ugly of Participatory Research.
- Diabetes UK: Living With Diabetes Day Event
- NHS England: Co-Production Shine a light events
- NHS England: Co-production week
- Patients Association: Patient Partnership Week
Tips, tools and training
- How to find a research study seeking Public Contributors for Co-production by Peter Bates
- Venue accessibility checklist resource
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Vitacam and championing co-design
In this case study, Moyeen Ahmad, the founder of Vitacam (a smartphone app that measures vital signs such as respiratory rate and heart rate), reflects on how the DigitalHealth.London Leap programme helped to facilitate involvement, ensuring people with lived experience of chronic conditions were at the heart of their usability study with London South Bank University.
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HIN South London Insights Team win the Public Involvement and community engagement (PICE) award at the European Implementation Event (EIE2025)
The team were recognised for their work providing evaluation support of the Race Health Observatory’s (RHO) Learning and Action Network (LAN) programme. The RHO LAN delivers an anti-racism quality improvement approach to address health inequalities and improve outcomes for the global majority of service users accessing maternity and neonatal services across England. You can read more about the RHO LAN online here.
The European Implementation Event conference brings together people from around the world who work to improve health and social care by using research and evidence. We are proud that this important work received recognition at this prestigious event!
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June is Myasthenia Gravis Awareness Month, and we are delighted to share our newly published report
The HIN convened a Myasthenia Gravis Transformation Network to develop a roadmap of recommendations that could be used to improve the care for people living with myasthenia gravis (an autoimmune condition that causes skeletal muscle weakness).
The report offers practical suggestions that can be taken at both the practitioner and system levels. The Network was made up of mostly people with lived experience, and some clinicians and colleagues from the voluntary sector. We are immensely grateful to our Network members for their contributions to this work. We hope this work helps to bring about change and an improvement in the experiences and outcomes for everyone affected by myasthenia gravis.
Read the report. |
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Kings Improvement Science (KIS) launch the 4Pi questionnaire
KIS have recently launched the 4Pi questionnaire and accompanying guidance, a new tool to assess experiences of patient and public involvement (PPI).
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Webinar: The role of emotions in public involvement in research
In March, around 200 people participated in a national ARC webinar chaired by ARC South London to explore the complex role emotions play in public involvement in health and care research.
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Blog: Creative approaches to community engagement and involvement
The Public and Community Involvement and Engagement (PCIE) team at ARC Kent, Surrey and Sussex (ARC KSS), together with Sarah Lloyd, an ARC KSS Public Advisor, recently hosted an event focusing on the topic of "Creative Approaches to Community Engagement and Involvement".
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Blog: Thank you events - 'The backbone to everything we do in public involvement
In this blog, Lucy Condon and Carmel McGrath from the ARC West Patient and Public Involvement (PPI) team discuss a recent thank you event they organised for public contributors and why they believe events like this are important.
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Webcomic brings to life the experiences of patient and public involvement
This web comic was developed by Dr Stan Papoulias, Patient and Public Involvement Research Theme Lead at ARC South London, to bring to life the experiences of those tasked with delivering PPI in diverse research environments.
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Shaping better services for autistic people in south east London
NHS South East London Integrated Care Board is working to improve services for autistic people by listening directly to those with lived experience and carers. Through an online survey and two focus groups, autistic people and their carers shared their experiences, highlighting key gaps in support and making recommendations.
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Webinar: Demystifying public and community involvement and engagement
The NIHR Research Support Service recently held a webinar providing practical advice on public and community involvement and engagement.
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Below are opportunities to get involved. Please do also share with others who may be interested.
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Healthcare Partnership Network
Healthcare Partnership Network (HPN) is a forum for key stakeholders from across the healthcare ecosystem to collaborate and define the way forward for the NHS. They are eager to include the public voice at future events:
- HPN Midlands (Mental Health), 26 and 27 June, Nottingham
- HPN South, 16 and 17 October, Heathrow
For further information please feel free to contact Alexis at alexis@pne-uk.com
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South East London ICB Creative Health Survey
South East London ICB are running a creative health survey (5 mins) to help build a picture of how creativity supports health and wellbeing.
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Government Survey: Shaping a new Men's Health Strategy for England
The Government has launched a new call for evidence to help shape England’s first Men’s Health Strategy. Whether you are a member of the public, a healthcare professional, an academic, an employer or part of a community organisation, your views could make a real difference.
Anyone aged 16+ living in England can take part, and organisations delivering services here are also welcome to contribute to the survey.
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Do you have any news or great examples of work related to involvement for a future bulletin?
Get in touch with Sophie Lowry.
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Co-Production Collective:
Co-Pro Cuppa Kings' Health Partners Workshop: Co-design for digital Health: Journey mapping
Tuesday 8 July, 10 am - 12 pm
The King’s Health Partners Digital Health Hub is running a free co-design methods workshop on journey mapping. This is open to UK-based health or care professionals, researchers, students, patients, carers, or small to medium-sized Enterprises using or interested in using a co-design process and methods to develop a digital health technology. You can be at any stage of a project.
Click here to book.
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NIHR Sedulous Collective CIC's bold community knowledge exchange series, The Good, The Bad & The Ugly of Participation. 'Tokenism vs True Participation - Blurred Lines'
Thursday, 17 July, 5 pm - 8 pm
Join this event to hear powerful lightning talks from grassroots, academic and funding perspectives, followed by a dynamic and interactive panel discussion.
It's more than a talk — it’s a space to reflect, connect and network with others who are committed to reimagining participation on community terms.
Book your free ticket using the Google form.
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NIHR Diabetes UK: Living With Diabetes Day event
Thursday 10 July 2025
This free online event is designed to support and inform people living with diabetes and anyone who wants to learn more.
Whether you’re newly diagnosed, have been managing diabetes for years, or are simply curious about the condition, our event provides expert advice, practical tips, and a welcoming space to share lived experiences. From sessions on diet for people with diabetes to footcare and diabetes, there’s an event for everyone.
Spaces are free and open to anyone living with diabetes or anyone looking to expand their understanding. For further information and how you can sign up, contact SE Coast and London.
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NHS England: Co-Production Shine a light event
Tuesday 29 July 10:30 am - 12:00 pm
These online events aim to shine a light on the potential of co-produced improvements and demonstrate what can be achieved when people working in the NHS and people with lived experience partner together. For more information and to register, please visit: Shine a Light on Co-production list of events | NHS England Events.
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NIHR NHS England Co-production week
30 June - 4 July
The Experience and Partnerships team at NHS England is hosting a week of webinars to mark Co-production Week, from 30 June to 4 July 2025.
The theme is "Innovation through Co-production," and fabulous guest speakers from providers, systems and regions who will share the difference co-production is making, their learning and top tips to support and inspire us. Check out the event to learn more.
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Useful Resource from Peter Bates
Check out this useful resource, ‘How to find a research study seeking Public Contributors for co-production’, written by Peter Bates, which also provides a list of organisations offering public involvement opportunities
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Thank you for reading the June 2025 edition of Partners with People.
If you would like to learn more about the HIN's involvement work, please get in touch with Sophie Lowry
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Please forward this email to anyone who may be interested.
To sign up to receive involvement updates and learn how to get involved, fill out this short survey.
Additionally, you can find previous editions of the Partners with People bulletin here.
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