Message from Mark Edington
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It has been a year since our Involvement Strategy was launched in November 2022, and during this time we’ve been able to really progress our work on the co-production of health innovation. Involvement has been important for our projects because it embeds the needs of our population and patients into our work and helps us support change across local systems. We know that we can’t make meaningful, lasting, positive change without the people we’re trying to impact being a part of the process.
The introduction of our Lived Experience Partners Faith Smith and Aurora Todisco has made a significant impact on our organisation. They have made valuable contributions to our work, especially ensuring the patient voice is heard during our initial and decision-making phases of our projects. By integrating them in this way, we are better able to determine how to meaningfully involve people throughout our projects.
Prior to the arrival of Faith and Aurora, we had weighed up working with external consultancies to bring the voice of lived experience into our projects during their early stages. However, seeing what Faith and Aurora have achieved as members of staff has helped change our view. Having our Lived Experience Partners embedded and immersed in our work gives them the best chance to contribute fully to projects in a way that simply isn’t possible otherwise.
One element that stood out in the last year is the level of clarity our Lived Experience Partners have provided us with during the recruitment phase of projects. An example of this was the support provided to our Insights Team during the early stages of their equity and equality guidance for Local Maternity & Neonatal Systems evaluation. The team needed to quickly recruit experts by experience representative of our diverse population who could make a positive impact to the project. Faith and Aurora reviewed the recruitment materials for experts by experience, assisted with disseminating the materials and supported shortlisting - helping us to recruit a diverse group of experts by experience, and overcome the recruitment challenge which often slows projects like this down.
One area where I believe patient involvement can have a really significant impact is through integrating patient feedback mechanisms into the development of digital technologies. Developing services with digital interfaces (such as mobile apps) can help us collect insights quicker from patients, allowing us to track their activity and levels of engagement. This helps us tailor our services to meet their individual needs and guide policies and priorities for the wider system. Implemented properly, we can also use this data to help us to understand patients who are having difficulties accessing services, or groups who are at risk of digital exclusion.
The work Faith, Aurora and our Implementation and Involvement Manager Sophie have completed over the past year has shown the value of embedding people with lived experience into our work. We see the future of involvement at the HIN going in the direction of starting to create a leadership network for people doing involvement work elsewhere to come together to build a community of experts. Connections across populations and learning from others and their experiences are of great value and importance to us; if you’re doing something exciting, innovative and impactful, we’d love to hear from you.
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Mark Edington
Director of Operations
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NHS Remote Monitoring in Rheumatoid Arthritis Service Trial
An article written by our two Experts by Experience, Emma-Jayne and Mary-Ann, discussing a recent trial of remote monitoring (RM) for rheumatoid arthritis has been published in the latest edition of Newsrheum magazine.
This article highlights how we collaboratively supported the scaling of an RM service across Lewisham & Greenwich NHS Foundation Trust and King’s College Hospital NHS Foundation Trust.
If you would like a copy of the magazine, please get in touch with Helen
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Adopting the Triangle of Commitment to work in partnership with people and communities in health and social care
Aurora, one of our HIN Lived Experience Partners, has recently published a framework to help combat the challenge many organisations face when trying to build meaningful partnerships with people and communities. This is the Triangle of Commitment.
This is a framework that works as a visual tool to spotlight three crucial elements to fostering a beneficial working relationship with healthcare professionals and individuals with lived experience.
Find out more about how the Triangle of Commitment can help create positive environments for involving people and communities in improving health and care.
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Involvement when systems go badly wrong
Ever wonder what happens when health and care systems go wrong? How does this affect our involvement work?
In this blog, Savi Hensman, ARC South London's involvement coordinator, discusses the many challenges that can occur with involvement when health and care systems go badly wrong.
Read more
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Looking after you & Listening to you
South London and Maudsley recently hosted a family and carer listening event with the theme “Looking after you and listening to you”.
During the event, Faith, also one of our Lived Experience Partners, led a session around the importance of carer involvement.
Read more about the event
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Needs and inequalities explored at Active Involvement in Research 2023
Active Involvement in Research was held on October 23 by the Applied Research Collaboration South London. This event focused on exploring south London's health and care needs and inequalities shared by patients, community patients, and other knowledge.
This was a hybrid event to make sure that a diverse group of people were able to take part in these lively and vital discussions.
Find out more about what was discussed in this event.
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Insight from SEL People’s Panel/survey 2 September – October 2023
South East London ICB has released the results of its most recent SEL People's Panel study. This was a survey to identify the motives and their understanding of getting aid or treatment for their different health concerns.
The survey showed a number of factors which played a part in people’s decisions, the most important of which was the intensity of symptoms, particularly when caring for children.
Read the full report to learn more.
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Community and NHS leaders pledge to tackle health inequalities across South East London
The South East London Citizens Community Health Assembly was held on the evening of 15 November. NHS leaders and people of the community pledged to continue supporting the Safer Surgeries campaign by championing ongoing efforts relating to:
- The creation of a Patient Advocacy Guide
- The creation of Safe Surgeries Champions
- The development of a community of practice on Safe Surgeries.’(NHS South East London pledge, Race and migration theme).
Find out more about how South East Londoners joined with NHS leaders to tackle health inequalities.
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South East London Polypharmacy Community of Practice upcoming meetings
The South East London Integrated Care Board (ICB) has worked with the Health Innovation Network to create a Community of Practice for Polypharmacy. This is where a group of people (patients, carers, and health and care staff) come together with a shared interest in ensuring people are taking the right medicines.
There are three upcoming in-person meetings located in south east London. These meetings are from 13:00–16:30 with the next one taking place on the 17 January 2024.
You do not need to attend all sessions, and Experts by Experience can be paid for their time (please contact Natasha Callender for more information).
More info to follow.
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Health Innovation Network South London Project:
The HIN are looking to speak to people with a serious mental illness (SMI), and their carers, about their experience of physical health checks. Interviews will take place online (MS Teams or Zoom) or over the phone, lasting around 30 minutes. You will be offered £30 for your participation.
Please get in touch with Shilpi Shobowale at shilpi.shobowale@nhs.net to learn more or express your interest in participating.
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Overprescribing Project Survey
South East London Integrated Care Board (SEL ICB) has released a survey asking people to share their experiences of taking many medicines.
This is an opportunity to get involved and let SEL ICB better understand your views on overprescribing.
This survey is anonymised and will close on 30 November 2023.
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Share your experience and what you think about NHS 111 service in south east London
South East London ICB are inviting people living in Bexley, Bromley, Greenwich, Lambeth, Lewisham and Southwark to tell them about your experiences of the NHS 111 service, what you think works well and what can be improved. Your experiences and views will help inform the design of the future NHS 111 service for everyone across south east London.
Complete the survey
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Do you have any news or great examples of work related to involvement for a future bulletin? Let Sophie Lowry know.
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Shine a Light events
12 December 2023 10:30am – 12:00pm & 16 January 2024 10:30am – 12:00pm
The Experience of Care Team-Co-production programme at NHS England is hosting their Shine a Light on Co-production Event in both December and January
The aim of this event is to highlight the “art of the possible” in relation to co-production and what can be accomplished when we work with people with lived experience.
The presenters will include HIN colleagues presenting our work on Chronic Pain.
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Have your say on the proposed future location of specialist cancer services for children
NHS England (London and South East regions) is holding a consultation about very specialist cancer treatment services for children living in Brighton and Hove, East Sussex, Kent, Medway, south London, and most of Surrey.
These services are currently provided in partnership between The Royal Marsden in Sutton and St George’s Hospital in Tooting. The consultation will help NHS England decide where they should be in the future. explains why things need to change.
Read about the proposals and give your views.
You can also join an online public meeting on:
- Monday 4 December, 6:30 - 8:30pm.
Register for the meeting.
The consultation started on 26 September and will close at midnight on 18 December 2023.
Read more
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Resource Library for Personalised Care
The Coalition for Personalised Care (C4PC) have added several great new resources this month to their growing resource library and we're always on the lookout for toolkits, guidance, discussion papers or reports relating to personalised care.
If you have information to share, please email the details to the team or upload them via this 'Share a Resource' form.
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New guide and video for people with lived experience
Shaping Our Lives has launched a new guide and video to help people understand the power and benefits of sharing their experiences. The free My Voice Matters guides provide organisations with an overview of involvement, from what it means to where people can find opportunities, e.g., with their local healthcare organisations.
The guide also includes useful links to tools like My Involvement Profile and their Involvement Pledge to help create an inclusive user experience.
Find out more and check out the guides here.
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