Welcome to the October edition of Partners with People
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September signalled the start of conference season, including the return of HETT - Healthcare Excellence Through Technology. Our Lived Experience Partners, Faith Smith and Aurora Todisco, were invited to be part of a panel on Navigating Patient Data Access - a topic with growing importance as projects like the One London Health Data Strategy continue to develop.
Faith reflects on her experience of taking part in a panel discussion: "It was a very exciting prospect to be sitting on a panel at HETT. The preparation beforehand was key to feeling confident and ready for the event. Excel London, were the conference was held, was very busy and buzzy, and everyone was so friendly and supportive.
I attended the session before mine in the same space, which helped me get a feel for the experience. Joining the panel, it was great to see a couple of familiar HIN faces in the audience. I volunteered to respond to the first question on how to address and recognise patients input. Throughout I was able to suggest solutions to the challenges around data, such as actually asking patients their opinions and wishes. I believe my contributions as a Lived Experience Partner offered a strategic voice that made a real difference to the panel."
On the importance of patient data access, Aurora writes: "We were excited to be offered the opportunity to join panels at HETT, which focused on the critical topic of patient data. Although I couldn't attend in person, I was thrilled to contribute remotely to the discussion on how patient involvement can shape the future of healthcare data. Ensuring patients have a voice in how their data is used is essential, and it's inspiring to see these conversations taking place on such a prominent stage. While data is the backbone of modern healthcare, it’s patient involvement that transforms it into meaningful change. The insights and perspectives from those who rely on health services are crucial to building trust and creating systems that truly serve people’s needs."
In this edition of Partners with People, Faith and Aurora share their top tips for navigating conferences, whether you are a regular speaker or a first time visitor. We also bring you the latest news from the HIN and updates from our partners.
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Kristina Leonnet
Involvement Manager
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News from the HIN
- Cancer and Serious Mental Illness: Patient Resources
- NHS 111 Transformation
- Top tips for navigating conferences: from speaking to attending
Partner updates
- Applied Research Collaborative South London: peer-led research blog
- King's Improvement Science: new infographic
- King's Health Partners: free Digital Health Hub online courses
- King's Fund: podcast on co-production, equity and change
- Patients Association: Patient Partnership Week 2024 recordings
Ways to get involved
- Change NHS: share your experiences of the NHS and ideas for change
- Creative Health Co-Production Group: develop new programmes
- Health Equity Network: call for new members
- London Anti-Racism Collaboration for Health: consultation survey
- London South Bank University and Vitacam: be part of the study
- NHS England: recruiting new patient and public voice partners
- LGBTQIA+ Sounding Board: looking for patient and public voice partners
- South East London: survey on sickle cell care
Upcoming events
- Co-Production Collective: Co-Pro cuppa
- NIHR ARC South London: Active Involvement Research 2024
Tips, tools and training
- Co-produced statements as powerful conversation starters
- Co-production collective resource library
- The Patient Experience Library
- Adopting the Triangle of Commitment to work in partnership
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Cancer and Serious Mental Illness: Patient Resources
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Working in partnership with people with lived experience and mental health services, the South East London Cancer Alliance and the Health Innovation Network South London (HIN) have developed new online resources to help people with serious mental illness feel more confident and in control when it comes to cancer.
The content was co-designed with people with lived experience and has been reviewed for clinical and factual accuracy. The resources also include videos from a person with lived experience of cancer and serious mental illness.
You can find out more about the impact of people with lived experience in our You Said, We Did involvement summary, which we created to help close the loop and share the difference those involved made.
For more information about the work please contact George London or Kristina Leonnet.
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NHS 111 Transformation
London's NHS 111 is being transformed to meet service demand sustainably for the future. The changes aim to shift patients who access the 111 services by phone onto digital pathways and online services, which enables them to access appropriate care in a timely way.
The HIN is supporting NHS England London engage with patients to ensure that the changes reflect their needs and benefit patients and the system as a whole. This includes two workshops with people who had recently used the NHS 111 service.
Patients were recruited through the networks of London’s Healthwatch and information about the patient insights project resulted in over 150 Londoners volunteering to support the work. Recommendations identified through the workshops have now been discussed with the NHS England London team working on the digital transformation of 111.
For more information about the work please contact Kate Lambe or Helen Sheldon.
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Top Tips for Navigating Conferences: From Attending to Speaking
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One way to emphasise the importance of integrating lived experience into health and care is through conferences. Panels and talks can encourage conversations, learning and change, whilst providing a platform for people with lived experience to share their views on pressing challenges in health and care.
If you’re new to conferences, or even a regular speaker, anxiety and imposter syndrome can sometimes overshadow the opportunity to talk or attend.
Reflecting on their experiences preparing for and attending this year's HETT, our Lived Experience Partners, Faith Smith and Aurora Todisco, share their advice for navigating conferences.
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Applied Research Collaborative South London
In this blog from the Applied Research Collaboration (ARC) South London, ARC members discussed the challenges and opportunities in peer-led research and the need for greater representation and inclusivity in health and social care research to address systemic inequalities as part of an ARC South London lunchtime learning workshop in May.
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King's Improvement Science (KIS) Project
Recently, Cheryl Levy of King's College Hospital Foundation Trust Quality Improvement team (QI) shared a great infographic from a QI project they undertook to increase Meaningful Involvement of patients and carers in QI. This was co-designed with patients/carers and came about after their initial collaboration with the KIS research team, when they developed a Theory of Change. It is a wonderful example of sharing the journey of a project in a simple and meaningful way.
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King's Health Partners
The King’s Health Partners Digital Health Hub has launched a free online course and methods library to support anyone interested in using co-design to develop a digital health innovation.
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King's Fund
The latest episode from The King's Fund podcast explores co-production, as The King's Fund Assistant Director Jo Vigor is joined by Clenton Farquharson CBE. They discuss what it means to have a health and care system that prioritises equity, inclusion and the voices of service users, plus explore Clenton's career as an advocate for marginalised voices and campaigner for meaningful change.
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Patients Association
The Patients Association ran a wide range of events for Patient Partnership Week 2024. You can catch up on the online webinars, including this panel on empowering patients as equal partners in care.
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Below are opportunities to get involved. Please do also share with others who may be interested.
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Change NHS: share your experiences
The government are inviting the public, NHS workforce and organisations to share their views, experiences and ideas to shape a new 10 Year Health Plan for England. In this video, Health Secretary Wes Streeting launches the national conversation: Change NHS.
Find out more and share your experiences
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Creative Health Co-Production Group: shape 'creative health' programmes
How can 'creative health' improve people's health and wellbeing? The Creative Health Co-Production Group is looking for 10 people from south east London to help explore how they can develop their creative health programmes. Members will meet for two hours every month to discuss their experiences of creativity and wellbeing.
Find out more and sign up
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Health Equity Network: join the Institute of Health Equity
The Health Equity Network brings people together to share their work on health equity in regions, towns, cities and organisations across the UK. The platform provides inspiration and encourages collaboration through joint working to generate a movement for health equity that can be felt across the country.
Find out more and sign up
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London Anti-Racism Collaboration for Health (LARCH): complete the consultation survey
LARCH supports commissioners and service providers in reducing all forms of racism experienced by those working in and being treated by health and care services. This 5 minute survey is open to staff working in health and care services to share their views on issues related to equality, diversity and inclusion, plus be in with a change of winning a £50 voucher by completing the survey. Deadline: 31 October
Find out more and complete the survey
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London South Bank University and Vitacam: test a new app
Vitacam is a software-based medical device used to measure and record the vital signs of patients living with Heart Failure or chronic respiratory disease. The founder of Vitacam is participating in the DigitalHealth.London Leap Programme, which supports diverse innovators in the adoption of their solutions. They are looking for patients with Heart Failure or respiratory diseases to try the app and share their experiences of this as part of the study.
Contact Kerry Wood for more information
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NHS England: recruiting patient and public voice partners
Patient and public voice (PPV) partners play a crucial role in specialised services and are represented throughout our boards/committees/groups to ensure that the views of patients, carers and the public are at the heart of the work they do. Specialised commissioning is currently recruiting several PPV partner roles patients with lived experience of covering a wide range of experiences.
Find out more and apply
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National LGBTQIA+ Sounding Board: recruiting patient and public voice partners
The LGBTQIA+ Sounding Board is a group of approximately 20 people with lived experience of NHS services and being lesbian, gay, bi+, trans, intersex, asexual and other queer identities. Patient and public voice (PPV) partners bring important views, perspective and challenge into the LGBTQIA+ Sounding Board. This role is essential in championing a service user, patient and/or carer/family viewpoint, ensuring that their needs are met through the outcomes of the programme. Deadline: 30 October
Find out more and apply
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Help shape the future of sickle cell care in south east London
South east London are launching new community-based services designed to better support people of all ages living with sickle cell. If you or a loved one is living with sickle cell and you are in south east London (Bexley, Bromley, Greenwich, Lambeth, Lewisham or Southwark), your views are crucial in shaping these services. Your insights will help create the best possible care for our community.
Complete the survey
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Do you have any news or great examples of work related to involvement for a future bulletin?
Get in touch with Kristina Leonnet.
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Co-Production Collective:
Co-Pro cuppa
Co-Pro Cuppas are informal monthly sessions, a chance to connect with friends, meet new people and chat about whatever you fancy over a cuppa!
Learn more and sign up
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NIHR ARC South London:
Active Involvement in Research 2024
This event brings together patients, service users, carers and local people and researchers for conversations around this year's theme: improving health and care in south London, shaping future research.
In person: Wednesday 13 November, 12pm-5pm
Online: Monday 18 November, 6pm
Find more details and register
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Co-produced statements as powerful conversation starters
Think Local Act Personal (TLAP) has published a resource called Making it Real. It showcases a set of coproduced statements that describe what good care and support look like.
It can be used by anyone who needs to spark ideas and start conversations about improving people’s lives.
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Co-production collective resource library
The Co-Production Collective have developed a resource library, which contains all sorts of useful things from a variety of different places and includes webpages, reports, videos, books, journal articles and much more.
This library is constantly being added to as more resources become available.
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The Patient Experience Library
The Patient Experience Library contains the latest and best evidence on patient experience and patient/public involvement.
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Adopting the Triangle of Commitment to work in partnership
This is a framework that works as a visual tool to spotlight three crucial elements to fostering a beneficial working relationship with healthcare professionals and individuals with lived experience. It can help create positive environments for involving people and communities in improving health and care.
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Thank you for reading the October 2024 edition of Partners with People.
If you would like to learn more about the HIN's involvement work, please get in touch with Kristina Leonnet.
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Please forward this email to anyone who may be interested.
To sign up to receive involvement updates and learn how to get involved, fill out this short survey.
Additionally, you can find previous editions of the Partners with People bulletin here.
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