Message from Alison White
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Welcome to our latest edition of Partners with People!
World Patient Safety Day is taking place on 17 September. The theme for 2023 is:
"Elevate the voice of patients!"
This is a phrase we believe is vital to the work we do at the HIN, and if we are going to make progress on patient safety then working collaboratively with patients, families, and carers is essential. Failure to do so is a theme in report after report, particularly where harm has occurred. For example, we recently heard calls for Martha’s Rule, following the death of 13-year-old Martha Mills, whose inquest determined she could have survived had she received better care. Failure to listen is also a common them in ongoing reviews of maternity services by Donna Ockenden.
Within the HIN Patient Safety Collaborative, involving people with lived experience in our work is at the forefront of our minds (although we also appreciate there is always room for improvement). For example, we are collaborating to reduce restrictive practices in mental health wards and working to improve chronic pain management by bringing the experiences of patients and staff together to prioritise and co-design solutions as equal partners.
In addition to patient safety, in this edition of Partners with People, you will hear from two Experts by Experience (Matilda and Lorraine) on their experience of working with us and the Applied Research Collaboration to develop HEAL-D, a type 2 diabetes self-management programme that is culturally tailored to support people from an African or Caribbean background. You can also find out about upcoming events, including Patient Partnership Week 2023. Taking place from 25–29 September, The Patients Association will be hosting several webinars on an array of topics, from tackling health inequalities to social prescribing.
Hear from our Expert by Experience, Graham, and HIN Senior Project Manager Natasha Callender as they discuss the work done to reduce opioid-related harm to patients experiencing chronic pain (non-cancer-related). This includes their work using an experience-based co-design project, which provides patients with the space to share their experiences.
As always, whilst we are keen to share our learning from the HIN, we welcome your thoughts on how we can do this better and learn from others. So please do get in touch if you have any comments or if you would like to find out more about how to get involved in our work.
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Alison White
Head of Patient Safety
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Reducing harm for people with chronic pain
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Involvement with HEAL-D: Expert by Experience stories
HEAL-D is a HIN-backed type 2 diabetes self-management programme that is culturally tailored for people of African and Caribbean heritage. Lorraine and Matilda, two of our Experts by Experience, were recently interviewed about their experience of dealing with early diagnosis, attending HEAL-D, and going on to support the further development of the programme.
To find out more about what was discussed during the course of the interview, read Matilida's blog and Lorraine's Blog.
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Understanding lived experience and intersectionality in health and care
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HIN Lived Experience Partner awarded for contribution to co-production
The annual East London NHS Foundation Trust (ELFT) People Participation Award took place in August. This was an event that brought together ELFT to celebrate and highlight the contributions of users and carers to improving healthcare services and help foster an environment built around shared improvements.
We are delighted that HIN Lived Experience Partner Aurora Todisco was recognised at the event and won the Carer’s Award. Congratulations Aurora!
Find out more about this event.
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What makes it harder for you and your community to thrive? Share your views
NHS South East London is working with partners, including hospitals, local councils, universities, and voluntary and community sector organisations, to co-design solutions to the issues communities are facing that affect their health and wellbeing.
They want to hear from you about what makes it harder for you and your community to thrive to inform action that will reduce inequality, and help make south east London a healthier, fairer, and more equitable place to live and work.
Read more and take part in the chat forum.
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NHS England and Royal College of Physicians Outpatients Strategy Survey
The Patients Association is working with NHS England and the Royal College of Physicians on the development of a new outpatient strategy, which will be launched early next year. You can learn more about the project in this blog.
They also launched a survey to hear from patients and carers about their recent experiences with NHS outpatient services, which can be accessed via the QR code in the poster above.
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Do you have any news or great examples of work related to involvement for a future bulletin? Let Sophie Lowry know.
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Patient Partnership Week 2023 - held by The Patient's Association
25 - 29 September 2023
Following the success of last year’s Patient Partnership Week, a second week is taking place from 25 to 29 September.
This will involve webinars and blogs that will celebrate all patient partnerships.
Find out more and sign up.
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Active Involvement in Research 2023
Friday 13 October, 12.30 – 17:00 and Tuesday 24 October 18:00 – 19:30
Each year, ARC South London holds an Active Involvement in Research event, bringing together local people and groups, research staff, public contributors and anyone else interested, in exploring together how research might influence health and social care in ways that matter locally.
This year, the event will be occurring face to face on the 13th October held at Coin Street Neighbourhood Centre, 108 Stamford Street, London SE1 9NH, near Waterloo, with an alternative online event on the 24th for those who cannot make it in person.
Get your tickets for the in-person event here, and the follow-up online event here
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Working with People and Communities Training
Learn how to engage with different people and communities to reduce inequalities and ensure inclusive access to healthcare in this training course from NHS England.
Over two three-hour sessions, you will:
- Learn how working effectively with diverse groups can help you better meet the needs of the different people you work with;
- Unpack how different communities can have very different experiences of healthcare as you identify who faces bigger barriers;
- Explore inclusive engagement activities;
- Develop an awareness of implicit bias and underrepresentation.
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Resource Library for Personalised Care
The Coalition for Personalised Care (C4PC) have added several great new resources this month to their growing resource library and we're always on the lookout for toolkits, guidance, discussion papers or reports relating to personalised care.
If you have information to share, please email the details to the team or upload them via this 'Share a Resource' form.
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Training session available: Where can public sector organisations start with co-production?
Co-create is running another session of their "Where can public sector organisations start with co-production?" training on Thursday, 28 September, from 1-3 pm.
Based on feedback from their last event, they've made sessions slightly longer to allow more time to discuss ideas which are working well and what could be done in the future.
Find out more and get your ticket.
Get in touch with info@wearecocreate.com if you have any questions.
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ARC South London Newsletter
The Applied Research Collaborative (ARC) South London produces a quarterly newsletter on involvement research. If you would like to be added to the mailing list please contact Savitri Hensman.
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Get Involved newsletter
NHS South East London ICB has released the latest issue of their #Get Involved newsletter. This newsletter includes opportunities for local people and Voluntary, Community and Social Enterprise (VCSE) members to be involved in their Integrated Care System programmes.
Find out more in the latest Get Involved newsletter.
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