Involvement Strategy Launch Reflections
Hello and welcome to the second edition of Partners with People.
Since our last newsletter, the HIN have launched our Involvement Strategy at a lively event with over 55 attendees, including representatives from local health and care organisations, the voluntary and community sector, HIN staff and 15 people with lived experience. Our strategy represents a reset in our thinking to co-produce health innovation, and the launch itself was a key milestone in our mission to speed up the best in health and care together.
The launch event was an exciting mix of presenting the strategy, combined with discussions to help further our thinking around involvement at the HIN and across the health and care system in south London. This included facilitated table discussions, during which people openly shared their insights and expertise on topics, such as inclusion, innovation and involvement approaches. The event was also an opportunity to publicise our Lived Experience Partners roles at the HIN. This is a key part of our strategy, and a role which will strengthen involvement across our organisation.
In addition to asking for your thoughts on our strategy, I wanted to share a couple of key insights from the launch event about inclusion and connection, which I will take with me into the design of future events.
Firstly, one of the event co-designers highlighted, based on her experience of autism, the importance of providing a quiet space at events in case people want time away from the social interactions and sensory load of an event. This is not something I had considered before, however, it is an essential element of event planning if we are to welcome people and provide a more inclusive environment.
We also had the pleasure of having three comedians share their experiences - through laughter - of living with autism, hemiplegia, and depression. Their personal stories conveyed serious messages, but in a way that disarmed and engaged people. Seeking to understand this a bit better, I came across a piece of work from Professor Sara Algoe, a social psychologist, who wrote: “For people who are laughing together, shared laughter signals that they see the world in the same way, and it momentarily boosts their sense of connection…Perceived similarity ends up being an important part of the story of relationships”.
At the HIN, we are really proud that we have taken this step to formalise our commitment to involving people. Whilst we have previously involved people in many aspects of our work (for example in HEAL-D and getUBetter), the launch of our strategy enables us to continue to grow and create a more embedded and consistent approach.
I am really excited to see the strategy implemented, and look forward to seeing what new involvement opportunities lie ahead in 2023. We are keen to keep learning and innovating in this area, so please continue to share your insights with us, including any on enabling inclusivity and creating connections.
Amanda Begley
Director of Digital Transformation, Health Innovation Network
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HEAL-D Involvement Blog
We have published a blog on the involvement that has occurred to develop a type 2 diabetes self-management and education programme HEAL-D, which stands for Healthy Eating and Active Lifestyles for Diabetes.
African & Caribbean communities in the UK are disproportionately affected by diabetes, with evidence that African and Caribbean communities are three times more likely to be affected than white Europeans. To tackle this inequity, the HEAL-D project teams have worked with people of African and Caribbean heritage to help ensure the programme is culturally tailored, enabling people to manage their diabetes through adapting their diet and lifestyle.
Read more about the project.
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Partnering With Minoritised Women and Birthing People to Improve Maternal and Perinatal Outcomes: a Darzi journey
Birthing people from black, Asian, or mixed ethnic backgrounds are significantly more likely to experience poor outcomes during their maternity journey. Between September 2021 and October 2022, Darzi Fellow Rosie Murphy undertook work in Croydon to explore these inequalities and what could be done to improve local services.
In the first in a series of blogs, Rosie discusses her experiences of partnering with minoritised people to tackle health inequalities and change services for the better.
Read the full blog.
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Take part in our Experience-based Co-design project
We are currently looking for people to get involved in a chronic pain experience based co-design project. If you have experience of using health and/or social care services in south London to manage chronic pain, or know someone who does, then please contact natasha.callender3@nhs.net for more information.
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Shine a Light on Co-Production
Thursday 19 January, 10.30am - 12pm
This event is to shine a light on the art of the possible in relation to co-production and demonstrate what can be achieved when we work together with people with lived experience.
Each event delivers two ‘best practice’ examples of co-production work. They are presented by people with lived and learnt experience. Presenters will share the difference co-production has made within their organisation and to them directly, their top tips on delivering co-production, what went well and the challenges they faced.
This event will feature the following speakers:
Mark Agathangelou, lived experience partner with NHS England, and Diarmuid Denneny, University College London who will present on CamPain, a patient-led peer-to-peer support group for chronic pain patients.
Find out more information and reserve your place.
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Healthcare in the Future: Through the Lens of Young People
Wednesday 25 January 5 - 6pm
The Patient Association' Chief Executive Rachel Power will be in conversation with Aishah Farooq, an advocate for children and young people, on Wednesday 25th January discussing what healthcare might look like in the future through the lens of young people. The event is free and will be held on Zoom.
Find out more and reserve you place.
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Public Participation Online Learning Programme
Various dates, January - March 2023
These sessions are about working in partnership with people and communities and include a mix of webinars and workshops, hosted by the Public Participation team. The sessions are aimed at colleagues working in or with NHS organisations in engagement activity with people and communities. Others working in the public and voluntary sectors may also find our online learning beneficial and are welcome to attend.
Some sessions are aimed at people who are newer to working with people and communities, helping them to build their knowledge and their toolkit of resources and ideas. Some sessions are aimed at more experienced engagement practitioners, helping them further explore good practice and innovative approaches. Sessions focus on:
- understanding how to build partnerships with people and communities;
- reducing health inequalities through better understanding of the barriers faced by under-represented communities, and how to overcome these;
- sharing inspiring ideas that can be put into practice, and tools and resources to support this; and,
- meeting the legal duties to involve the public in the work of the NHS.
Find out more about each session and register your place.
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Co-Pro Cuppa February
Tuesday 7 February, 12 - 1.30pm
Co-Pro Cuppas are informal monthly sessions, a chance to connect with friends, meet new people and chat about whatever you fancy over a cuppa! An especially good opportunity for those new to Co-Production Collective to meet some of our community and find out more.
You are very welcome to join this very informal session on Zoom (join via video or phone call).
Find out more and reserve your place.
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Co-design for Success: Why Patient Involvement is Crucial in Innovation
Friday 24 February, 12 - 2pm
Learn how to work with patients and why you should make it a priority with innovation experts Dr Rebecca Baines and Dr Sebastian Stevens. Their two-hour online presentation will provide an evidence-based introduction into the benefits and practicalities of gathering end-user feedback throughout your development process, including specialist expertise in identifying and working with vulnerable and traditionally overlooked communities.
Aims of the session include:
• exploring the meaning and importance of health equity in relation to innovation;
• understanding the principles of meaningful co-design; and,
• considering practical examples of how to design, deliver, and evaluate co-design activities.
Find out more and reserve your place.
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Experience-based Co-design workshop
This in-person one-day workshop teaches participants how to use the Experience Based Co-Design (EBCD) method to improve the delivery of their services and make them more responsive to patients.
Participants will gain the knowledge and skills to enable them to lead a co-design project of their own.
Find out more including costs.
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Royal College of Paediatrics and Child Health Podcasts - Our Voices: Engagement Done Well
This podcast is all about working with children and young people to help improve their health and the health of others. Have a listen for ideas, examples and information on engagement from RCPCH doctors and young people from RCPCH &Us.
This episode features interviews with Dr Shouja from Wales, Kath from Barts Health, Louca-Mai a researcher from University of Hertfordshire and Ally from the Luna Project.
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Research Ready Communities Pilot Report
The Research Ready Communities Programme pilot conducted by NIHR last year has now been evaluated. The report includes local approaches, findings, lessons learned and recommendations for long-term engagement and supporting community champions. The programme has now become part of NIHR's work for the coming year.
Read the full evaluation here.
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Patient, Carer and Public Voice members needed for NHS Assembly
NHS England are inviting applications to become Patient, Carer and Public Voice members of the NHS Assembly.
We are looking to recruit a small number of individuals committed to bringing their experience, knowledge, perspective and challenge into the NHS Assembly’s work, to join an existing small group of Patient, Carer and Public Voice members.
The NHS Assembly is a national forum that regularly brings together a range of stakeholders from across the health and care system to advise the NHS England leadership as a “guiding coalition” in support of the implementation of the NHS Long Term Plan.
Find out about how you can apply. We also encourage you to keep checking the page for any new opportunities to get involved at NHSE level.
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Co-production Collective Resource Library
The Co-production Collective have a communal resource library on involvement and co-production that is open for everyone to use. It contains all sorts of useful tools from a variety of different places and includes webpages, reports, videos, books, journal articles and much more. The team have collated this list of resources rather than curated it, and will continue to add to it and refine the way that the website works over time.
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ARC South London Involvement Resources
Applied Research Collaboration South London, part of NIHR, have curated a unique collection of resources that provide a practical introduction to carrying out involvement in research. These include guidance documents, books, podcasts, training, websites, toolkits and events. They are suitable for public contributors, researchers or anyone wanting to support public involvement in research (with or without research training).
The resources cover essential aspects of involvement including: payment, co-production in research, participatory research, involving Black, Asian and minority ethnic groups, involving young people, inclusive language, evaluating research, research ethics and implementation.
Find out more and download the collection.
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