Welcome to the November edition of Partners with People
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Welcome to November's Partners with People newsletter!
This summer, we were thrilled to welcome two new Lived Experience Partners to the team – Kreena and Dale. They’ve already made a huge impact, working across all our teams and connecting with external partners to shape more inclusive, responsive health innovation.
On her role, Kreena shared:
"We know that innovation is desperately needed, and we know that putting lived experience at the heart of our work can transform the way we serve, treat and interact with patients. I’ve had roles that have brought about change in support, charity, policy and government. Continuing that work and bringing the same impact to our health services was an opportunity not to be missed, and I am very humbled and grateful to be here."
Dale also spoke about why they were attracted to the role:
"This role stood out to me as one that would allow me to engage in a wide range of research projects in a way that I had never come across before. As someone who has done a lot of research, community engagement and activism, this felt like a natural continuation and evolution of my past experiences. I’m also really happy that the HIN is an organisation that values and respects lived experience knowledge, as that has always been something I have championed in all the work I do."
We’re excited about the energy and insight Kreena and Dale bring to our work. If you’d like to collaborate or find out more about their roles, please do get in touch.
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Sophie, Dale and Kreena
Involvement Manager and Lived Experience Partners
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News from the HIN
- Health Equity Team (HET) Evaluation Report
Partner updates
- King's Improvement Science (KIS) celebrates patient and public involvement at heart of programme with legacy resource and film
- Podcast: Patient’s Association, a conversation with Sir Jim Mackey
Podcast: ‘Digital Ecology’ episode on co-design for digital health with Dr Emelia Delaney and Dr Lili Golmohammadi from the King’s Health Partners Digital Health Hub
Blog: ARC South London - Changing tack: Partnership in research across London
- Short Documentary: Local young people create a short documentary to share their lived experiences of autism
- Launch of NHS Patient Entrepreneur Programme.
Ways to get involved
- South east London: Feedback sessions about improving communication between GP doctors and hospital specialists
- Survey - HIN South London: Martha’s Rule Awareness Survey for Sickle Cell Disorder
- Focus group – Signatur Biosciences: Breast Cancer Testing and Treatment Decisions
Upcoming events
- Active Involvement in Research 2025
- King’s Health Partners: The Lifecycle of Patient and Public Involvement & Engagement workshops
- NHS England: Co-Production Shine a Light events
Tips, tools and training
- Module on Patient and Public Involvement and Engagement in Mental Health Technology Research
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The Health Equity Team (HET) Evaluation Report
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King's Improvement Science (KIS) celebrates patient and public involvement at heart of programme with legacy resources and film
Since 2013, KIS has partnered with patients, the public and health professionals to improve care across south London. As the King’s Health Partners-funded programme concludes, contributors share their reflections, project highlights and tips for other organisations looking to embed PPI in their work.
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Podcast: Patient’s Association, a conversation with Sir Jim Mackey
Catch up on this Patient Partnership Week 2025 session with Sir Jim Mackey, Chief Executive of NHS England, discussing how NHS leaders and systems can work with patients to shape a more transparent, accountable and patient-focused NHS. Listen on the website or Spotify.
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Podcast: ‘Digital Ecology’ podcast episode on co-design for digital health with Dr Emelia Delaney and Dr Lili Golmohammadi from the King’s Health Partners Digital Health Hub - now live!
The episode, Making Digital Health Accessible: Creativity, Co-Design, and Collaboration at King’s Health Partners, covers the challenges of co-design in healthcare, such as:
- Getting people comfortable with more creative and less traditional methods of working
- The value of good facilitation
- The importance of scaffolding activities for different audiences
Tune in to the latest episode of the Digital Ecology podcast to learn more about how co-design and creative, speculative approaches are being applied in digital health.
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Blog: ARC South London - Changing tack: Partnership in research across London
As ARC South London prepares to host this year’s Active Involvement in Research events, involvement coordinator Savitri Hensman reflects on the background, opportunities and challenges of London-wide collaboration.
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Short Documentary: Local young people create a short documentary to share their lived experiences of autism
This year, Lambeth Council and Chocolate Films Workshop partnered to support 27 young people from three local schools to create a short documentary about their lived experiences of autism.
The project supported two key priorities of our All-Age Autism strategy:
- To improve understanding and awareness of autism, which is the aim of the film
- To support more autistic individuals in employment.
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Launch of NHS Patient Entrepreneur Programme
Are you a patient or family carer whose experience has led you to develop a healthcare innovation? Do you want to learn new skills to help scale this idea?
Many patients and family carers have developed innovations and inventions that can improve healthcare, but people often need support to move their innovations beyond the design phase. This free,12-month support programme gives successful applicants access to workshops and webinars, mentoring, business planning sessions, healthcare experts and taught modules, a network of mentors and more.
Applications for this programme opened on Monday, 3 November and close on Friday, 28 November 2025.
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Below are opportunities to get involved. Please do also share with others who may be interested.
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South east London: Feedback sessions about improving communication between GP doctors and hospital specialists
The HIN, working with South East London ICB are looking for people who live in Bexley, Bromley, Greenwich, Lambeth, Lewisham or Southwark to attend a 1-hour feedback session to check our understanding of the challenges patients face when they move between the GP and hospital care, and vice versa.
The aim is to help us understand what works well and where we can make things better. This session takes place on Tuesday, 18 November and Wednesday, 19 November. For more information and to register your interest, please view the poster and complete the survey.
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Survey – HIN South London: Martha’s Rule Awareness Survey for Sickle Cell Disorder
This survey aims to collect information on how Martha’s Rule is working for people living with Sickle Cell Disorder (SCD). People living with SCD are at a high risk of acute deterioration, and we think being aware of Martha's Rule BEFORE being admitted to the hospital may help keep patients safe. By answering this short survey, you can help test our assumptions.
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Focus group – Signatur Biosciences: Breast Cancer Testing and Treatment Decisions
Signatur Biosciences, an Imperial College spinout with the mission to make precision diagnostics more accessible, is developing a new test to help predict whether breast cancer might come back after treatment. This test could also help doctors decide whether chemotherapy is needed. It's designed to be a faster, more affordable alternative to an existing test (OncotypeDX) and uses the same type of gene information.
They are looking to speak with people who have been diagnosed with breast cancer to understand views on this new test. They are running two small focus groups to help them make sure the test meets the real needs of patients. (each lasting about 2–2.5 hours): one in person at Imperial College London, the other virtual. Participants will be compensated with £75 (vouchers or bank transfer)
If you're interested or would like more information, please contact: patients@signatur.bio
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Do you have any news or great examples of work related to involvement for a future bulletin?
Get in touch with Sophie Lowry.
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Active Involvement in Research 2025
Tuesday 11 November, 5.30-6.30 pm
Join the Applied Research Collaboration online at their free event to help shape the future of applied health and care research in London.
Book your place
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King’s Health Partners: The Lifecycle of Patient and Public Involvement & Engagement workshops
Tuesday 18 November 2-4 pm
The King’s Health Partners Digital Health Hub is running two free workshops, led and facilitated by their PPIE group members. Join online on 18 November 2-4 pm. Book here.
Developed and delivered by PPIE group members, this workshop will help you better understand the people you want to involve in your work and how to work with them well.
This workshop is open to UK-based health or care professionals, managers, researchers, students, patients, family carers, or Small to medium-sized enterprises using or interested in using) a co-design process and methods to develop a digital health technology. You can be at any stage of a project.
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NHS England: Co-Production Shine a light events
These online events aim to shine a light on the potential of co-produced improvements and demonstrate what can be achieved when people working in the NHS and people with lived experience partner together. For more information and to register, visit Shine a Light on Co-production | NHS England Events.
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Co-Production Collective: Co-Pro Cuppa
Tuesday 2 December, 1:30 pm
Co-Pro Cuppas are informal monthly sessions, a chance to connect with friends, meet new people and chat about whatever you fancy over a cuppa! To find out more and sign up, visit Eventbrite for the next event on 2 December.
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Module on Patient and Public Involvement and Engagement in Mental Health Technology Research
A year ago, the HIN, in partnership with MQ Mental Health, published the Mindset Extended Reality (XR) Innovation Support Programme learning resources, including a module on Patient and Public Involvement and Engagement in mental health technology research.
The module is free to access to all and provides an accessible introduction to people and companies that want to learn more about patient involvement, with a focus on health technology research.
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Thank you for reading the November 2025 edition of Partners with People.
If you would like to learn more about the HIN's involvement work, please get in touch with Sophie Lowry
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Please forward this email to anyone who may be interested.
To sign up to receive involvement updates and learn how to get involved, fill out this short survey.
Additionally, you can find previous editions of the Partners with People bulletin here.
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